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Security report for maladiesraresinfo.org

Maladies Rares Infos Services · Healthcare · France

Medium risk. 8 critical or high findings in Security headers, GDPR outside view and 1 other check.

Security score

52/100

Risk levelMedium

0–100, higher is better. How it is calculated

Maladies Rares Infos Services is a French national non-profit organization providing information, orientation, and support services related to rare diseases. The website serves patients, caregivers, and healthcare professionals with comprehensive resources, including general information, treatment options, expert networks, and a community forum. Supported by the French Ministry of Health and notable non-profit partners such as AFM Téléthon and Fondation Groupama, the organization holds a reputable position in the healthcare sector in France. Technically, the website employs modern web technologies including Bootstrap 5, Masonry layout, Google Tag Manager for analytics, and Calendly for appointment scheduling. The site is well-structured, mobile-optimized, and accessible, with good SEO practices. However, some security best practices such as security headers and cookie consent mechanisms are missing, which could be improved. From a security perspective, the site uses HTTPS and secure forms but lacks explicit security policies, incident response contacts, and vulnerability disclosure mechanisms. The absence of WHOIS data reduces domain trust slightly, but the strong branding, government backing, and transparent content mitigate concerns. Overall, the site is safe, professional, and trustworthy with room for security enhancements. Strategically, the organization should focus on improving privacy compliance by implementing cookie consent, publishing security policies, and enhancing WHOIS transparency to strengthen trust and compliance posture.

Scanned

NIS2 and GDPR posture

GDPR outside view
35/ 100 · High
Checks completed
7of 7

NIS2 Art. 21(2)

  1. (a) Risk analysis and security policies: Not visible from outside
  2. (b) Incident handling: One indicator
  3. (c) Business continuity, backups and crisis management: Not visible from outside
  4. (d) Supply chain security: Not visible from outside
  5. (e) Secure acquisition, development and maintenance, including vulnerability handling: Partly checked
  6. (f) Assessing the effectiveness of security measures: Not visible from outside
  7. (g) Cyber hygiene and security training: Not visible from outside
  8. (h) Cryptography and encryption: Partly checked
  9. (i) HR security, access control and asset management: One indicator
  10. (j) Multi-factor authentication and secured communications: Not visible from outside

This scan rated NIS2 with an earlier keyword method that is no longer shown; rescan for the per-article view. Risk management, continuity, supply chain, training, MFA, management oversight (Art. 20) and incident reporting (Art. 23) need internal evidence, and Guard cannot tell whether NIS2 applies to this organisation.

GDPR is indicative only, based on publicly visible signals: Articles 7, 12, 13 and 32 of Regulation (EU) 2016/679 and Article 5(3) of the ePrivacy Directive. Not a certification or legal assessment.

Priority findings

8 findings rated critical or high. Fix these first.

  1. Security headers

    Security headers are instructions your web server sends to every visitor’s browser. Missing ones leave visitors more exposed to attacks such as clickjacking and injected scripts.

    • High

      Missing Strict-Transport-Security header

      Forces HTTPS connections

      What to do: Add "Strict-Transport-Security: max-age=31536000; includeSubDomains; preload"

      • CWE-319
      • OWASP A04:2025
      • ASVS V3.4.1
    • High

      Missing X-Frame-Options header

      Prevents clickjacking attacks

      What to do: Add "X-Frame-Options: DENY" or "X-Frame-Options: SAMEORIGIN"

    • High

      Missing Content-Security-Policy header

      Controls resources the browser is allowed to load

      What to do: Implement a Content-Security-Policy appropriate for your application

      • ASVS V3.4.3
      • OWASP Secure Headers: OWASP Secure Headers Project recommends Content-Security-Policy: default-src 'self'; form-action 'self'; base-uri 'self'; object-src 'none';…

  2. GDPR outside view

    These are the privacy signals visitors and data protection authorities look for under GDPR.

    • High

      No Privacy Policy found

      GDPR requires a clear and accessible privacy policy

      What to do: Add a comprehensive privacy policy page and link to it prominently

    • High

      No Cookie Policy found

      GDPR requires clear information about cookie usage

      What to do: Add a dedicated cookie policy explaining cookie usage and purposes

Need hands-on remediation? Email guard@offseq.com

Keep watching maladiesraresinfo.org

This scan found 26 issues across 6 checks. Monitoring re-runs those checks daily, emails you when something material changes and records each fix, so you can show progress.

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  • TLS certificates and expiry
  • DNS records
  • SPF, DKIM and DMARC
  • Security headers
  • GDPR and NIS2 posture
  • Exposed services
  • Third-party trackers
  • Security score drift

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Results by check

Each check with its score, findings and the evidence it collected.

How this score is calculated

The security score runs 0–100, higher is better. It is the plain average of the security checks that completed in this scan, each counted equally. A check that could not run is left out: it counts neither as a pass nor as a fail.

Counted in this score

SSL/TLS
72
Security headers
20
Email security
70
DNS health
75
Network security
40
GDPR outside view
35
Average
52

Not counted

  • NIS2 outside view: Re-weights evidence from the TLS, email, DNS, network and hygiene checks, so counting it would count that evidence twice. Shown on its own.
  • OffSeq Observations: An AI reading of the site, useful context but not reproducible evidence. Shown on its own.

Findings that cap the score at 49

Each of these is serious on its own, so while any is present the site cannot rate better than high risk, however good the other checks are.

  • The certificate is not trusted by browsers
  • The website is not served over HTTPS
  • A database, remote desktop, file-sharing or Telnet service is reachable from the internet
  • The page loads a script from a compromised source
  • The domain registration has expired
  • SPF authorises every server to send mail as the domain

Partial scans

When the site blocks Guard or most checks cannot run, the score covers only the checks that ran (usually DNS and email), is capped at 75 and is shown as partial, without a risk level.

Risk levels

  • Critical0–25
  • High26–49
  • Medium50–75
  • Low76–100

Technical appendix

Business context, site observations and technical notes gathered during the scan, and the standards behind each reference.

Business context

Business profile

Maladies Rares Infos Services operates in the healthcare and non-profit sectors, targeting patients, caregivers, and healthcare professionals dealing with rare diseases in France. Its business model is service-oriented, funded by government and philanthropic support rather than commercial revenue. The organization leverages partnerships with government bodies and rare disease networks to enhance its reach and credibility. The website acts as a key communication and support channel, offering educational content, orientation services, and community engagement through forums. Growth indicators include recent updates and active social media presence. The partnership ecosystem is robust, involving national health authorities and rare disease alliances, which strengthens its market position and operational effectiveness.

Security posture

The website demonstrates a moderate to good security posture with HTTPS enforced and secure form handling. However, the lack of security headers such as Content Security Policy, X-Frame-Options, and HSTS reduces protection against common web attacks. No explicit security or incident response policies are published, and no vulnerability disclosure or security.txt files are present, which limits transparency and readiness for security incidents. The use of third-party scripts like Google Tag Manager and Calendly introduces potential risk vectors that require regular auditing. Overall, while no critical vulnerabilities are evident, the site would benefit from enhanced security controls and documented policies to improve resilience and compliance with GDPR and other regulations.

Recommendations

  1. Implement comprehensive security headers including CSP, HSTS, and X-Frame-Options to mitigate common web vulnerabilities.
  2. Add a cookie consent banner/mechanism to comply with GDPR and enhance user privacy transparency.
  3. Publish a clear security policy and incident response contact information on the website.
  4. Consider establishing a vulnerability disclosure policy or security.txt file to facilitate responsible reporting of security issues.
  5. Regularly audit and update third-party scripts and dependencies to minimize security risks.
Site observations

Automated reading of the public site. Ratings are indicative.

Business

Company
Maladies Rares Infos Services
Description
Service national d’information, d'orientation et de soutien sur les maladies rares, destiné aux malades, aidants, et professionnels de santé.
Key services
Information on rare diseases, Orientation to expert health structures, Listening and support services, Online forum for exchange
Content quality
excellent
Branding
consistent

Technology

Stack
Bootstrap 5.3.3, Masonry layout 4.2.2, Google Tag Manager (gtag.js), Calendly widget, Mailjet pop-in
Frameworks
Bootstrap
Performance
moderate
Mobile
good
Accessibility
good
SEO
good

Security

Observed score
85/100
Good practices seen
  • HTTPS enforced
  • Secure forms with validation
  • No exposed sensitive data in HTML

Analytics and tracking

Services
Google Analytics via Google Tag Manager
Tracking level
moderate
Privacy practices
good

Advertising

Marketing tools
Calendly, Mailjet
Transparency
excellent

Site quality

Design
excellent
User experience
excellent
Content relevance
excellent
Navigation
excellent
Professionalism
excellent
Trustworthiness
high

Key observations

  1. Website is fully accessible with rich content in French about rare diseases.
  2. No WHOIS data available due to malformed query; domain registration details unknown.
  3. Site uses HTTPS and modern web technologies with good accessibility and SEO.
  4. No cookie consent banner detected despite use of tracking scripts.
  5. Contact options include phone number and contact form; no direct email addresses publicly listed.
  6. Social media presence on Facebook, Twitter (X), Instagram, LinkedIn, and YouTube.
  7. No visible security.txt or vulnerability disclosure policy.
  8. No advertising present; site funded by government and non-profit organizations.
  9. Content is safe for general audiences with no adult or questionable material.
Technical notes

Notes

The website is built using Bootstrap 5.3.3 for responsive design and layout, enhanced with Masonry for dynamic content arrangement. Google Tag Manager is used for analytics tracking, and Calendly integration allows users to schedule phone appointments. The site uses modern HTML5 and CSS3 standards with good accessibility features such as skip links and ARIA labels. Performance is moderate, with asynchronous loading of scripts and optimized images. No CMS is explicitly detected, suggesting a custom or static site architecture. Hosting provider details are not disclosed. The site is mobile-friendly and SEO-optimized with proper meta tags and Open Graph data. Opportunities exist to improve technical security configurations and privacy compliance mechanisms.
Standards and sources

Reference chips under each finding point to the standard, regulation or specification the finding relates to. They are taken from the official datasets below and mapped conservatively: a finding with no defensible link shows none. NIS2 and GDPR references mark where a finding is relevant evidence, not a compliance verdict. Implementing Regulation (EU) 2024/2690 binds digital infrastructure and digital service providers; for other entities it is the most detailed public reading of the Article 21 measures. WCAG, EN 301 549, European Accessibility Act and Web Accessibility Directive references name the requirement an automated accessibility rule relates to; they are not a conformance verdict.

Retrieved 2026-10-25

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