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Security report for haea.org

US Hereditary Angioedema Association · Healthcare · United States

Medium risk. 9 critical or high findings in Security headers, GDPR outside view and 4 other checks.

Security score

52/100

Risk levelMedium

0–100, higher is better. How it is calculated

The US Hereditary Angioedema Association (HAEA) is a specialized non-profit organization dedicated to supporting individuals affected by Hereditary Angioedema (HAE), a rare genetic condition. The organization provides education, advocacy, research support, and access to treatment resources, positioning itself as a leading voice in the HAE community within the United States. Their website reflects a strong commitment to patient and caregiver engagement through comprehensive resources, community stories, and advocacy opportunities. Technically, the website employs a modern and stable technology stack including Bootstrap, jQuery, Handlebars.js, and Google Analytics for tracking. Hosting utilizes Amazon S3 for media assets, indicating a reliable infrastructure. The site is mobile-optimized with good navigation and SEO practices, though accessibility features could be enhanced. Security is solid with HTTPS enforced, but the absence of security headers and cookie consent mechanisms suggests room for improvement in compliance and protection. From a security perspective, the site shows no signs of vulnerabilities or malicious content. However, the lack of visible security policies, incident response contacts, and vulnerability disclosure mechanisms indicates a moderate maturity level in security governance. The WHOIS data is unavailable due to query failure or privacy protection, but the website content and domain usage strongly support legitimacy and trustworthiness. Overall, the HAEA website is a professional, trustworthy, and well-maintained platform serving a niche healthcare advocacy role. Strategic improvements in privacy compliance, security headers, and transparency around security policies would further enhance its risk posture and user trust.

Scanned

NIS2 and GDPR posture

GDPR outside view
53/ 100 · Medium
Checks completed
7of 7

NIS2 Art. 21(2)

  1. (a) Risk analysis and security policies: Not visible from outside
  2. (b) Incident handling: One indicator
  3. (c) Business continuity, backups and crisis management: Not visible from outside
  4. (d) Supply chain security: Not visible from outside
  5. (e) Secure acquisition, development and maintenance, including vulnerability handling: Partly checked
  6. (f) Assessing the effectiveness of security measures: Not visible from outside
  7. (g) Cyber hygiene and security training: Not visible from outside
  8. (h) Cryptography and encryption: Partly checked
  9. (i) HR security, access control and asset management: One indicator
  10. (j) Multi-factor authentication and secured communications: Not visible from outside

This scan rated NIS2 with an earlier keyword method that is no longer shown; rescan for the per-article view. Risk management, continuity, supply chain, training, MFA, management oversight (Art. 20) and incident reporting (Art. 23) need internal evidence, and Guard cannot tell whether NIS2 applies to this organisation.

GDPR is indicative only, based on publicly visible signals: Articles 7, 12, 13 and 32 of Regulation (EU) 2016/679 and Article 5(3) of the ePrivacy Directive. Not a certification or legal assessment.

Priority findings

9 findings rated critical or high. Fix these first.

  1. Security headers

    Security headers are instructions your web server sends to every visitor’s browser. Missing ones leave visitors more exposed to attacks such as clickjacking and injected scripts.

    • High

      Missing Strict-Transport-Security header

      Forces HTTPS connections

      What to do: Add "Strict-Transport-Security: max-age=31536000; includeSubDomains; preload"

      • CWE-319
      • OWASP A04:2025
      • ASVS V3.4.1
    • High

      Missing X-Frame-Options header

      Prevents clickjacking attacks

      What to do: Add "X-Frame-Options: DENY" or "X-Frame-Options: SAMEORIGIN"

    • High

      Missing Content-Security-Policy header

      Controls resources the browser is allowed to load

      What to do: Implement a Content-Security-Policy appropriate for your application

      • ASVS V3.4.3
      • OWASP Secure Headers: OWASP Secure Headers Project recommends Content-Security-Policy: default-src 'self'; form-action 'self'; base-uri 'self'; object-src 'none';…

  2. GDPR outside view

    These are the privacy signals visitors and data protection authorities look for under GDPR.

    • High

      No Cookie Policy found

      GDPR requires clear information about cookie usage

      What to do: Add a dedicated cookie policy explaining cookie usage and purposes

    • High

      No Cookie Consent Banner found

      GDPR requires explicit consent for non-essential cookies

      What to do: Implement a cookie consent banner that appears on first visit

Need hands-on remediation? Email guard@offseq.com

Keep watching haea.org

This scan found 22 issues across 6 checks. Monitoring re-runs those checks daily, emails you when something material changes and records each fix, so you can show progress.

Daily monitoring

Recommended

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  • TLS certificates and expiry
  • DNS records
  • SPF, DKIM and DMARC
  • Security headers
  • GDPR and NIS2 posture
  • Exposed services
  • Third-party trackers
  • Security score drift

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Results by check

Each check with its score, findings and the evidence it collected.

How this score is calculated

The security score runs 0–100, higher is better. It is the plain average of the security checks that completed in this scan, each counted equally. A check that could not run is left out: it counts neither as a pass nor as a fail.

Counted in this score

SSL/TLS
72
Security headers
20
Email security
80
DNS health
65
Network security
20
GDPR outside view
53
Average
52

Not counted

  • NIS2 outside view: Re-weights evidence from the TLS, email, DNS, network and hygiene checks, so counting it would count that evidence twice. Shown on its own.
  • OffSeq Observations: An AI reading of the site, useful context but not reproducible evidence. Shown on its own.

Findings that cap the score at 49

Each of these is serious on its own, so while any is present the site cannot rate better than high risk, however good the other checks are.

  • The certificate is not trusted by browsers
  • The website is not served over HTTPS
  • A database, remote desktop, file-sharing or Telnet service is reachable from the internet
  • The page loads a script from a compromised source
  • The domain registration has expired
  • SPF authorises every server to send mail as the domain

Partial scans

When the site blocks Guard or most checks cannot run, the score covers only the checks that ran (usually DNS and email), is capped at 75 and is shown as partial, without a risk level.

Risk levels

  • Critical0–25
  • High26–49
  • Medium50–75
  • Low76–100

Technical appendix

Business context, site observations and technical notes gathered during the scan, and the standards behind each reference.

Business context

Business profile

HAEA operates in the healthcare non-profit sector, focusing on a rare disease community. Its market positioning is strong within this niche, leveraging advocacy, education, and patient support as core competitive advantages. The business model relies on donations, fundraising, and community engagement rather than commercial sales. Target customers include patients, caregivers, and healthcare professionals. Growth indicators include active social media presence, ongoing events, and clinical research support. Partnerships with fundraising platforms and image catalog providers enhance service delivery. The organization demonstrates a clear strategic focus on improving quality of life for HAE patients through education and access to therapies.

Security posture

The website exhibits a moderate security maturity level with HTTPS enforced and no visible sensitive data exposure. However, the absence of security headers such as Content Security Policy (CSP), HSTS, and X-Frame-Options reduces defense-in-depth. No published security or incident response policies were found, and no dedicated security contact channels exist. Cookie consent mechanisms are missing, which may impact GDPR compliance. No known vulnerabilities or malware were detected. Overall, the security posture is adequate for a non-commercial advocacy site but could benefit from formalized policies and enhanced technical controls.

Recommendations

  1. Implement standard security headers (CSP, HSTS, X-Frame-Options) to improve protection against common web attacks.
  2. Add a cookie consent banner and detailed cookie policy to enhance privacy compliance, especially for EU visitors.
  3. Publish a clear security policy and incident response contact information to improve transparency and trust.
  4. Consider establishing a vulnerability disclosure program or security.txt file to engage security researchers.
  5. Enhance accessibility features to improve usability for all users, including those with disabilities.

Contact details published on the site

Addresses
Legal name
US Hereditary Angioedema Association
Site observations

Automated reading of the public site. Ratings are indicative.

Business

Company
US Hereditary Angioedema Association
Description
A non-profit advocacy organization serving people with Hereditary Angioedema (HAE) and their caregivers, providing education, support, advocacy, research, and access to treatment.
Key services
HAE education and awareness, Patient and caregiver support, Advocacy and political engagement, Clinical research support, Access to medications and reimbursement assistance, Community engagement and events
Content quality
good
Branding
consistent

Technology

Stack
Bootstrap, jQuery, Handlebars.js, Typeahead.js, Perfect Scrollbar, Google Analytics, Google Tag Manager
Performance
moderate
Mobile
good
Accessibility
basic
SEO
good

Security

Observed score
80/100
Good practices seen
  • HTTPS enforced
  • No exposed sensitive data in HTML
  • Use of secure external libraries

Analytics and tracking

Services
Google Analytics, Google Tag Manager
Tracking level
moderate
Privacy practices
basic

Advertising

Transparency
basic

Site quality

Design
good
User experience
good
Content relevance
good
Navigation
good
Professionalism
good
Trustworthiness
high

Key observations

  1. Website is fully accessible with no blocking or WAF challenge
  2. Content is focused on Hereditary Angioedema education and support
  3. Strong presence of patient stories and community engagement
  4. No signs of phishing, malware, or suspicious content
  5. WHOIS data unavailable, likely due to privacy protection or query error
  6. Good use of modern web technologies and analytics
  7. Lacks explicit cookie consent and detailed security policies
Technical notes

Notes

The website uses a combination of Bootstrap for responsive design, jQuery for DOM manipulation, Handlebars.js for templating, and Typeahead.js for search autocomplete functionality. Media assets are hosted on Amazon S3, indicating cloud-based hosting for static content. Google Analytics and Google Tag Manager are used for visitor tracking and analytics. The site loads scripts asynchronously to optimize performance. While the technical stack is modern and stable, there is no evidence of a CMS, suggesting a custom or static site architecture. Performance is moderate with good mobile optimization but could be improved with enhanced caching and security headers.
Standards and sources

Reference chips under each finding point to the standard, regulation or specification the finding relates to. They are taken from the official datasets below and mapped conservatively: a finding with no defensible link shows none. NIS2 and GDPR references mark where a finding is relevant evidence, not a compliance verdict. Implementing Regulation (EU) 2024/2690 binds digital infrastructure and digital service providers; for other entities it is the most detailed public reading of the Article 21 measures. WCAG, EN 301 549, European Accessibility Act and Web Accessibility Directive references name the requirement an automated accessibility rule relates to; they are not a conformance verdict.

Retrieved 2026-10-25

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