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Security report for alliance-maladies-rares.org

Alliance Maladies Rares · Healthcare · France

High risk. 8 critical or high findings in Network security, Security headers and 2 other checks.

Security score

49/100

Risk levelHigh

0–100, higher is better. How it is calculated

Alliance Maladies Rares is a French non-profit organization dedicated to promoting research, mutual aid, information dissemination, training, and advocacy related to rare diseases and rare disabilities. Established since 2001, it serves patients, families, healthcare professionals, and researchers within the rare disease community in France. The website reflects a professional and consistent brand presence, targeting a general audience interested in healthcare and support services for rare conditions. Technically, the website is built on WordPress, utilizing common libraries such as jQuery and Bootstrap, hosted by OVH sas, a reputable French hosting provider. The site demonstrates moderate performance and good mobile optimization, with basic accessibility and SEO practices in place. Cookie consent mechanisms are implemented, indicating awareness of GDPR requirements, although privacy and terms of service policies are missing. From a security perspective, the site uses HTTPS and has domain status protections to prevent unauthorized transfers or deletions. However, DNSSEC is not enabled, and no security headers were detected, representing areas for improvement. No incident response or vulnerability disclosure policies are published, which could enhance trust and compliance. No adult or explicit content is present, making the site safe for general audiences. Overall, the website is credible and trustworthy, with a solid business foundation and technical infrastructure. Strategic improvements in privacy compliance, security headers, and DNSSEC implementation would strengthen its security posture and regulatory adherence.

Scanned

NIS2 and GDPR posture

GDPR outside view
50/ 100 · Medium
Checks completed
7of 7

NIS2 Art. 21(2)

  1. (a) Risk analysis and security policies: Not visible from outside
  2. (b) Incident handling: One indicator
  3. (c) Business continuity, backups and crisis management: Not visible from outside
  4. (d) Supply chain security: Not visible from outside
  5. (e) Secure acquisition, development and maintenance, including vulnerability handling: Partly checked
  6. (f) Assessing the effectiveness of security measures: Not visible from outside
  7. (g) Cyber hygiene and security training: Not visible from outside
  8. (h) Cryptography and encryption: Partly checked
  9. (i) HR security, access control and asset management: One indicator
  10. (j) Multi-factor authentication and secured communications: Not visible from outside

This scan rated NIS2 with an earlier keyword method that is no longer shown; rescan for the per-article view. Risk management, continuity, supply chain, training, MFA, management oversight (Art. 20) and incident reporting (Art. 23) need internal evidence, and Guard cannot tell whether NIS2 applies to this organisation.

GDPR is indicative only, based on publicly visible signals: Articles 7, 12, 13 and 32 of Regulation (EU) 2016/679 and Article 5(3) of the ePrivacy Directive. Not a certification or legal assessment.

Priority findings

8 findings rated critical or high. Fix these first.

  1. Network security

    Services reachable from the internet are the first thing attackers probe. Anything open that does not need to be should be closed.

    • Critical

      Critical Service Exposed: MongoDB

      Port 27017 (MongoDB) is publicly accessible - MongoDB - NoSQL database

      What to do: Immediately restrict access to MongoDB using firewall or VPN

      • NIS2 21(2)(e)
      • IR 2024/2690 6.7.2(f): Implementing Regulation (EU) 2024/2690, Annex point 6.7.2(f): Network security
      • NIST CM-7: NIST SP 800-53 Rev. 5 CM-7: Least Functionality
      • NIST SC-7: NIST SP 800-53 Rev. 5 SC-7: Boundary Protection

  2. Security headers

    Security headers are instructions your web server sends to every visitor’s browser. Missing ones leave visitors more exposed to attacks such as clickjacking and injected scripts.

    • High

      Missing Strict-Transport-Security header

      Forces HTTPS connections

      What to do: Add "Strict-Transport-Security: max-age=31536000; includeSubDomains; preload"

      • CWE-319
      • OWASP A04:2025
      • ASVS V3.4.1
    • High

      Missing Content-Security-Policy header

      Controls resources the browser is allowed to load

      What to do: Implement a Content-Security-Policy appropriate for your application

      • ASVS V3.4.3
      • OWASP Secure Headers: OWASP Secure Headers Project recommends Content-Security-Policy: default-src 'self'; form-action 'self'; base-uri 'self'; object-src 'none';…

  3. GDPR outside view

    These are the privacy signals visitors and data protection authorities look for under GDPR.

    • High

      No Privacy Policy found

      GDPR requires a clear and accessible privacy policy

      What to do: Add a comprehensive privacy policy page and link to it prominently

    • High

      No Cookie Consent Banner found

      GDPR requires explicit consent for non-essential cookies

      What to do: Implement a cookie consent banner that appears on first visit

Need hands-on remediation? Email guard@offseq.com

Keep watching alliance-maladies-rares.org

This scan found 23 issues across 6 checks. Monitoring re-runs those checks daily, emails you when something material changes and records each fix, so you can show progress.

Daily monitoring

Recommended

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  • TLS certificates and expiry
  • DNS records
  • SPF, DKIM and DMARC
  • Security headers
  • GDPR and NIS2 posture
  • Exposed services
  • Third-party trackers
  • Security score drift

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Results by check

Each check with its score, findings and the evidence it collected.

How this score is calculated

The security score runs 0–100, higher is better. It is the plain average of the security checks that completed in this scan, each counted equally. A check that could not run is left out: it counts neither as a pass nor as a fail.

Counted in this score

SSL/TLS
52
Security headers
45
Email security
70
DNS health
75
Network security
0
GDPR outside view
50
Average
49

Not counted

  • NIS2 outside view: Re-weights evidence from the TLS, email, DNS, network and hygiene checks, so counting it would count that evidence twice. Shown on its own.
  • OffSeq Observations: An AI reading of the site, useful context but not reproducible evidence. Shown on its own.

Findings that cap the score at 49

Each of these is serious on its own, so while any is present the site cannot rate better than high risk, however good the other checks are.

  • The certificate is not trusted by browsers
  • The website is not served over HTTPS
  • A database, remote desktop, file-sharing or Telnet service is reachable from the internet · found on this site
  • The page loads a script from a compromised source
  • The domain registration has expired
  • SPF authorises every server to send mail as the domain

Partial scans

When the site blocks Guard or most checks cannot run, the score covers only the checks that ran (usually DNS and email), is capped at 75 and is shown as partial, without a risk level.

Risk levels

  • Critical0–25
  • High26–49
  • Medium50–75
  • Low76–100

Technical appendix

Business context, site observations and technical notes gathered during the scan, and the standards behind each reference.

Business context

Business profile

Alliance Maladies Rares occupies a niche position within the French healthcare non-profit sector, focusing on rare diseases and disabilities. Its business model centers on advocacy, research support, and community engagement rather than commercial revenue. The organization benefits from a long-established domain and consistent branding, which supports its reputation. The website's content and services align with the needs of patients, families, and professionals in the rare disease ecosystem. While no direct partnerships or subsidiaries were identified, the presence of social media links suggests active engagement with broader networks. Growth indicators include ongoing content updates and event promotions. The lack of explicit business contact information online may reflect privacy considerations typical of non-profits.

Security posture

The website demonstrates a moderate security maturity level. HTTPS is enforced, and domain registration protections are in place, which are fundamental security measures. However, the absence of DNSSEC and security headers such as Content-Security-Policy or X-Frame-Options indicates potential vulnerabilities to DNS spoofing and clickjacking attacks. No exposed sensitive data or vulnerable libraries were detected in the provided content. The lack of published security policies, incident response contacts, or vulnerability disclosure mechanisms limits transparency and preparedness. Compliance with GDPR is partial, with cookie consent implemented but privacy policies missing. Overall, the security posture is adequate but requires enhancements to meet best practices and regulatory expectations.

Recommendations

  1. Enable DNSSEC on the domain to protect against DNS spoofing and improve domain security.
  2. Publish comprehensive privacy policy and terms of service pages to enhance compliance and user trust.
  3. Implement and audit security headers including Content-Security-Policy, X-Frame-Options, and others to mitigate common web attacks.
  4. Develop and publicize an incident response policy with clear contact channels for security issues.
  5. Regularly update WordPress core, plugins, and themes to minimize vulnerabilities and maintain security hygiene.
Site observations

Automated reading of the public site. Ratings are indicative.

Business

Company
Alliance Maladies Rares
Description
La mission de l’Alliance Maladies Rares est de susciter, de développer, sur les questions communes aux maladies rares et aux handicaps rares, d’origine génétique ou non, toutes actions de recherche, d’entraide, d’information, de formation et de revendication.
Key services
research promotion, mutual aid, information dissemination, training, advocacy
Content quality
good
Branding
consistent

Technology

Stack
WordPress, jQuery, Bootstrap, Slick Carousel, Gridtab
Frameworks
Bootstrap
Platforms
WordPress
Performance
moderate
Mobile
good
Accessibility
basic
SEO
good

Security

Observed score
70/100
Good practices seen
  • HTTPS enabled
  • clientDeleteProhibited and clientTransferProhibited domain statuses

Analytics and tracking

Services
Google Analytics
Tracking level
moderate
Privacy practices
basic

Advertising

Transparency
basic

Site quality

Design
good
User experience
good
Content relevance
good
Navigation
good
Professionalism
good
Trustworthiness
high

Key observations

  1. Website is a French non-profit organization focused on rare diseases and disabilities.
  2. Content is in French and professionally presented.
  3. No privacy policy or terms of service pages found, which is a compliance gap.
  4. Cookie consent mechanism is implemented, indicating some GDPR awareness.
  5. No explicit contact emails or phone numbers found in the HTML content provided.
  6. Uses WordPress CMS with common plugins and libraries.
  7. No security.txt or vulnerability disclosure policy detected.
  8. DNSSEC is not enabled, which is a security improvement opportunity.
  9. No security headers detected in the provided data; recommend audit and implementation.
  10. No signs of adult or NSFW content; content is safe for general audiences.
Technical notes

Notes

The website is built on a WordPress CMS platform, leveraging popular libraries such as jQuery and Bootstrap for responsive design and interactivity. Hosting is provided by OVH sas, a well-known French provider, which supports the site's performance and reliability. The site shows moderate loading speeds and good mobile optimization, though accessibility features are basic and could be improved. SEO practices are adequately implemented with proper meta tags and structured content. The technical stack is modern but would benefit from enhanced security configurations and performance tuning to reduce technical debt and improve user experience.
Standards and sources

Reference chips under each finding point to the standard, regulation or specification the finding relates to. They are taken from the official datasets below and mapped conservatively: a finding with no defensible link shows none. NIS2 and GDPR references mark where a finding is relevant evidence, not a compliance verdict. Implementing Regulation (EU) 2024/2690 binds digital infrastructure and digital service providers; for other entities it is the most detailed public reading of the Article 21 measures. WCAG, EN 301 549, European Accessibility Act and Web Accessibility Directive references name the requirement an automated accessibility rule relates to; they are not a conformance verdict.

Retrieved 2026-10-25

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